{"entity": "publication", "iuid": "ce07dafa94264153bbd2381895060f14", "timestamp": "2026-09-26T23:46:52.369Z", "links": {"self": {"href": "https://publications-affiliated.scilifelab.se/publication/ce07dafa94264153bbd2381895060f14.json"}, "display": {"href": "https://publications-affiliated.scilifelab.se/publication/ce07dafa94264153bbd2381895060f14"}}, "title": "Predictors of Loss to Follow-Up Among Pediatric and Adult Hematopoietic Cell Transplantation Survivors: A Report from the Center for International Blood and Marrow Transplant Research.", "authors": [{"family": "Buchbinder", "given": "David", "initials": "D"}, {"family": "Brazauskas", "given": "Ruta", "initials": "R"}, {"family": "Bo-Subait", "given": "Khalid", "initials": "K"}, {"family": "Ballen", "given": "Karen", "initials": "K"}, {"family": "Parsons", "given": "Susan", "initials": "S"}, {"family": "John", "given": "Tami", "initials": "T"}, {"family": "Hahn", "given": "Theresa", "initials": "T"}, {"family": "Sharma", "given": "Akshay", "initials": "A"}, {"family": "Steinberg", "given": "Amir", "initials": "A"}, {"family": "D'Souza", "given": "Anita", "initials": "A"}, {"family": "Kumar", "given": "Anita J", "initials": "AJ"}, {"family": "Yoshimi", "given": "Ayami", "initials": "A"}, {"family": "Wirk", "given": "Baldeep", "initials": "B"}, {"family": "Shaw", "given": "Bronwen", "initials": "B"}, {"family": "Freytes", "given": "C\u00e9sar", "initials": "C"}, {"family": "LeMaistre", "given": "Charles", "initials": "C"}, {"family": "Bredeson", "given": "Christopher", "initials": "C"}, {"family": "Dandoy", "given": "Christopher", "initials": "C"}, {"family": "Almaguer", "given": "David", "initials": "D"}, {"family": "Marks", "given": "David I", "initials": "DI"}, {"family": "Szwajcer", "given": "David", "initials": "D"}, {"family": "Hale", "given": "Gregory", "initials": "G"}, {"family": "Schouten", "given": "Harry", "initials": "H"}, {"family": "Hashem", "given": "Hasan", "initials": "H"}, {"family": "Schoemans", "given": "H\u00e9l\u00e8ne", "initials": "H"}, {"family": "Murthy", "given": "Hemant S", "initials": "HS"}, {"family": "Lazarus", "given": "Hillard M", "initials": "HM"}, {"family": "Cerny", "given": "Jan", "initials": "J"}, {"family": "Tay", "given": "Jason", "initials": "J"}, {"family": "Yared", "given": "Jean A", "initials": "JA"}, {"family": "Adekola", "given": "Kehinde", "initials": "K"}, {"family": "Schultz", "given": "Kirk R", "initials": "KR"}, {"family": "Lehmann", "given": "Leslie", "initials": "L"}, {"family": "Burns", "given": "Linda", "initials": "L"}, {"family": "Aljurf", "given": "Mahmoud", "initials": "M"}, {"family": "Diaz", "given": "Miguel Angel", "initials": "MA"}, {"family": "Majhail", "given": "Navneet", "initials": "N"}, {"family": "Farhadfar", "given": "Nosha", "initials": "N"}, {"family": "Kamble", "given": "Rammurti", "initials": "R"}, {"family": "Olsson", "given": "Richard", "initials": "R"}, {"family": "Schears", "given": "Raquel", "initials": "R"}, {"family": "Seo", "given": "Sachiko", "initials": "S"}, {"family": "Beattie", "given": "Sara", "initials": "S"}, {"family": "Chhabra", "given": "Saurabh", "initials": "S"}, {"family": "Savani", "given": "Bipin N", "initials": "BN"}, {"family": "Badawy", "given": "Sherif", "initials": "S"}, {"family": "Ganguly", "given": "Siddhartha", "initials": "S"}, {"family": "Ciurea", "given": "Stefan", "initials": "S"}, {"family": "Marino", "given": "Susana", "initials": "S"}, {"family": "Gergis", "given": "Usama", "initials": "U"}, {"family": "Kuwatsuka", "given": "Yachiyo", "initials": "Y"}, {"family": "Inamoto", "given": "Yoshihiro", "initials": "Y"}, {"family": "Khera", "given": "Nandita", "initials": "N"}, {"family": "Hashmi", "given": "Shahrukh", "initials": "S"}, {"family": "Wood", "given": "William", "initials": "W"}, {"family": "Saber", "given": "Wael", "initials": "W"}], "type": "journal article", "published": "2020-03-00", "journal": {"title": "Biol Blood Marrow Transplant", "issn": "1523-6536", "volume": "26", "issue": "3", "pages": "553-561", "issn-l": null}, "abstract": "Follow-up is integral for hematopoietic cell transplantation (HCT) care to ensure surveillance and intervention for complications. We characterized the incidence of and predictors for being lost to follow-up. Two-year survivors of first allogeneic HCT (10,367 adults and 3865 children) or autologous HCT (7291 adults and 467 children) for malignant/nonmalignant disorders between 2002 and 2013 reported to the Center for International Blood and Marrow Transplant Research were selected. The cumulative incidence of being lost to follow-up (defined as having missed 2 consecutive follow-up reporting periods) was calculated. Marginal Cox models (adjusted for center effect) were fit to evaluate predictors. The 10-year cumulative incidence of being lost to follow-up was 13% (95% confidence interval [CI], 12% to 14%) in adult allogeneic HCT survivors, 15% (95% CI, 14% to 16%) in adult autologous HCT survivors, 25% (95% CI, 24% to 27%) in pediatric allogeneic HCT survivors, and 24% (95% CI, 20% to 29%) in pediatric autologous HCT survivors. Factors associated with being lost to follow-up include younger age, nonmalignant disease, public/no insurance (reference: private), residence farther from the tranplantation center, and being unmarried in adult allogeneic HCT survivors; older age and testicular/germ cell tumor (reference: non-Hodgkin lymphoma) in adult autologous HCT survivors; older age, public/no insurance (reference: private), and nonmalignant disease in pediatric allogeneic HCT survivors; and older age in pediatric autologous HCT survivors. Follow-up focusing on minimizing attrition in high-risk groups is needed to ensure surveillance for late effects.", "doi": "10.1016/j.bbmt.2019.11.003", "pmid": "31726205", "labels": [], "xrefs": [{"db": "mid", "key": "NIHMS1600729"}, {"db": "pmc", "key": "PMC7367505"}, {"db": "pii", "key": "S1083-8791(19)30743-8"}], "notes": [], "created": "2026-09-23T11:50:40.039Z", "modified": "2026-09-23T11:50:40.061Z"}